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 Image description: Picture says "May Day", written in red text over white background. Below the text there are black outlines of people in a crowd with their fists in the air, at what looks like a rally.
Image description: Picture says "May Day", written in red text over white background. Below the text there are black outlines of people in a crowd with their fists in the air, at what looks like a rally.

On behalf of the Disability Justice Network of Ontario, we would like to wish all of our comrades in struggle a happy International Workers' Day or "May Day".

International Workers' Day is a celebration of the working class that is promoted by the International Labour Movement which occurs every year on May 1st. The date was chosen by a pan-national organization of socialist and communist political parties to commemorate the Haymarket affair, which occurred in Chicago on 4 May 1886, the date of the legal establishment of the eight-hour work day, and other demands of the proletariat.


The continued fight for workers' rights cannot be separated from the working class struggle of people with disabilities.


As the late Hellen Keller, deafblind socialist and organizer theorized: "First of all, we must organize. We must make ourselves so aggressive a political factor that our natural protectors can no longer deny us a voice in directing and shaping the laws under which we must live"

Happy May Day!

Written by: Lulu Larcenciel


This is a picture of the autistic self advocacy movement
Image description: An infinity symbol. From left to right, the symbol is gradientally colored in with red, then orange, yellow, green, blue, and finishing with purple. The rainbow-colored infinity symbol represents the diversity of the autism spectrum as well as the greater neurodiversity movement. Image created by: Eric - http://fyeahautismspectrum-blog.tumblr.com/post/5852385279

There are a lot of events being held online this May Day, but many Autistic self-advocates in Canada will be paying attention to one in particular. Some advocates have been dreading this event, the “National Autism Strategy Townhall”, facilitated by three non-Autistic MPs, with no Autistic people in the room, since they heard about it. For all of this month, like every April, agencies and groups across Canada had to be reminded that the “puzzle piece” symbol for autism is offensive and harmful. Even though a study was published in 2017 that proved even a generic “puzzle piece” symbol invokes negative assumptions like incompleteness or oddity in the general population, the stigmatizing icon has endured(1). Symbols like the “puzzle piece” or the “Light It Up Blue” campaign have continued to thrive and spread ableist stereotypes, thanks to non-Autistic people speaking over Autistic people in advocacy and policy conversations. Entrenched ableism is hard to fight, and it’s hard to move the dial in conversations like like this - especially if everyone in the room is non-Autistic Despite there being many thriving Autistic Advocacy groups across Canada, Autistic people are rarely invited when the government discusses policy that affects Autistic people. Part of the reason for this is a phenomenon well-known to Disability Justice activists: “martyr parents”. Groups of parents who love their children but carry internalized stigma and prejudice, worldwide, have stalled efforts for disability rights and justice since our struggles began. These parents often believe that since they have Autistic children, they are experts of Autism. This is of course absurd; straight parents of gay children are not experts in Homosexuality, and just like homophobic parents can cause harm to children, so can ableist parents. From casual stigma to filicide, caregivers of Autistic people have been known historically for both inadvertently and sometimes purposefully perpetuating negative outcomes for Autistic kids and adults(3). Canadian Autistic people need a government that puts Autistic voices front and centre while talking about autism, not the non-Autistic parents of Autistic children. No doubt during this townhall, disability advocates will cringe at the misinformation, stigma, and misrepresentation of our experiences that will be shared by some parents and practitioners. No doubt it will be stressful - advocates have been justifiably concerned since the event was suddenly announced last week and we are quite used to hearing ourselves be dehumanized and disrespected under the guise of “caring” on primetime. In this as in most discussions of Autism, it is Non-Autistic people moderating and taking the lead, so we have to hope that our MPs (In this case, NDP MP Don Davies, Liberal MP Judy Sgro, and PC MP Mike Lake) are listening when Autistic people reach out to them. We need our MPs to be cognisant of Autistic people’s preferences, from the language we prefer by a great majority (“Autistic” is preferred over “With” anything(4)) to the goals we think Autism research or a National Autism Strategy should have (5). How can we do better and make sure Autistic people are engaged in the process going forward? Would it matter?

Our government needs to be centering Autistic voices, and it matters quite a lot. Stigma against autistic people is dangerous, and when stigma is internalized into how someone sees and conducts themselves, it can lead to suicidality (6). Autistic people are facing a crisis of autonomy, and this is a front of Disability Justice which has received little attention and support from progressive organizations or parties. In this townhall, and probably the next and the one after that, some Autistic people hope to hear government officials address Autistic people and their families with respect and understanding. Some Autistic people have long given up on feeling represented by our government. Will these MPs be able to show that Canada is moving forward toward Disability Justice, or will Autistic people be disappointed once more? To watch the townhall, you can attend through this link:


References: 1. “Do puzzle pieces and autism puzzle piece logos evoke negative associations?” Published in the journal Autism in 2017. Importantly, this study concluded that “Participants explicitly associated puzzle pieces, even generic puzzle pieces, with incompleteness, imperfection, and oddity” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6085079/ An article detailing the offensive and ableist history of the logo, “The Ableist History of the Puzzle Piece Symbol for Autism”: https://intheloopaboutneurodiversity.wordpress.com/2019/03/20/the-ableist-history-of-the-puzzle-piece-symbol-for-autism/ 2. “Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts” - Frontiers in Psychology https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5368186/ 3. “How Autism Warrior Parents Harm Autistic Kids”: https://medium.com/the-establishment/how-autism-warrior-parents-harm-autistic-kids-6700b8bf6677 “How Murder Victims With Disabilities Get Blamed For Their Own Death”: https://www.huffingtonpost.ca/entry/murder-victims-disabilities-mercy-killings 4. Explaining Identity First Language - from the Autistic Self-Advocacy Network: https://autisticadvocacy.org/about-asan/identity-first-language/ A survey of 11,560 people of various neurotypes which shows definitively that the vast majority of autistic people prefer the term “autistic”, and that it is non-autistic people who prefer “with autism”. It also shows that non-autistic people are interested in “curing” autism but autistic people are opposed to a “cure”, and much more. https://autisticnotweird.com/2018survey/ 5. Ontario Autistic Advocacy group, Autistics4Autistics, has put together this policy piece about a “National Autism Strategy”: https://a4aontario.com/2019/09/14/autistic-self-advocates-and-national-autism-policy-where-we-stand/ 6. On Stigma, Masking, and Suicidality “Research Sheds Light On Why Suicide Is More Common In Autistic People” : https://www.nottingham.ac.uk/news/pressreleases/2018/august/new-research-sheds-light-on-why-suicide-is-more-common-in-autistic-people.aspx


About the Authour

Lulu is an Autistic mental health advocate, progressive organizer, and philosopher, passionate about integrating disability justice into all of our political and activist structures. You can follow Lulu at @FunFactsLulu.


Image description: Lulu stares to their right, smiling slightly. Lulu has rainbow coloured hair; a mix of purple, red, orange, yellow, green, and maroon. behind them, are staircase railings, and a brick wall.


The Disability Justice Network of Ontario (DJNO) launched on September 13th 2018 in Hamilton Ontario. We were funded by the Youth Opportunities Fund (OTF) with $200,000 over three years to create a youth led organization, focused on the vision of “Creating a world where people with disabilities are free to be”.

With the support of many individuals and organizations across Ontario who believe in our vision, we have been able to work toward a just and accessible Ontario, wherein people with disabilities:

  • Have personal and political agency

  • Can thrive and foster community

  • Build the power, capacity, and skills needed to hold people, communities, and institutions responsible for the spaces they create

We did this through the establishment of our Youth Action Council, our youth led Research Committee, and through our community driven Campaigns Committee. You can read more about what we have accomplished as an organization since our launch here.


Due to the fact that we are youth led, we are setting up an Advisory Board, to help us along with our vision of being a sustainable, and one day, provincial organization.

Our newly established volunteer Advisory Board will serve a term of one year. The purpose of this would be to assist with reporting processes for staff, and guiding the governance of the organization. This committee shall be made up of (6) advisory board members and organizational mentors (currently, the Hamilton Centre for Civic Inclusion (HCCI). This advisory board is separate from all other organizational committees.

The responsibilities of the advisory board are to:

  • Attend a monthly Disability Justice Network of Ontario (DJNO) Advisory meeting, beginning in April 2020 and ending in April 2021.

  • Be familiar with Disability Justice Network of Ontario (DJNO)’s vision, mission and uphold its values.

  • Provide guidance regarding the current and future structure of the Disability Justice Network of Ontario (DJNO)

  • To create and provide a governance and reporting process for all staff at the Disability Justice Network of Ontario (DJNO)

  • Assist with the creation and development of a Strategic Plan for the Disability Justice Network of Ontario (DJNO).



Kojo Damptey (he/him):

Organizational Mentor


Image caption: Kojo is facing crowd that is not visible in the picture. He is holding a megaphone to his mouth and has his right index finger pointed forward. He is wearing a brown jacket.


Kojo "Easy" Damptey is the current Executive Director at the Hamilton Centre for Civic Inclusion (HCCI), and former Program Manager, where he has served as an organizational mentor for the Disability Justice Network of Ontario (DJNO) since its inception. He is a music producer, songwriter, keyboardist, composer and filmmaker. He was born and raised in Accra, Ghana. At the age of 17 he moved to Hamilton, to pursue an education at McMaster University studying Chemical Engineering. He is currently working toward a Masters of Arts (M.A.) from McMaster University in Cultural Studies & Critical Theory, studying African Political Thought for the 21st Century and beyond. He has also received an M.A. in Interdisciplinary Studies, specializing in Leadership Studies and Intercultural & International Communication, where he examined the role of Indigenous governance practices in contemporary governance in Africa.


Ameil Joseph (he/him):

Advisory Board Member


Image caption: Ameil is smiling into the camera. He is wearing a blue plaid collared shirt, and a brown blazer.


Ameil J. Joseph is an academic, author, researcher, and social activist. He is an Associate Professor in the School of Social Work at McMaster University. Joseph draws on perspectives of critical forensic mental health, postcolonial theory, critical race theory, mad studies, and critical disability studies in his writing and research. One of the broad areas he has focused on is the confluence of colonial, racialized violence within criminal justice, mental health, and immigration systems.

Wendy Porch (she/her):

Advisory Board Member


Image caption: Wendy smiles at the camera. She is wearing a light red lipstick and has long, straight brown hair.


Wendy Porch is the Executive Director of the Centre for Independent Living Toronto (CILT). She has been working in the field of accessibility, disability, human rights, and education for more than 20 years and is a life-long disability justice advocate. Most recently, Ms. Porch was the Manager of Episodic Disabilities Initiatives at Realize in Toronto, where she managed Realize's many initiatives related to supporting the employment and income security of people living with HIV and other episodic disabilities. She also chaired the national Episodic Disabilities Forum, a partnership of more than 25 national episodic disability organizations and stakeholders. She has an M.Ed. in Counselling Psychology from the University of Toronto; she is a member of the City of Toronto’s Accessibility Advisory Committee and chairs its Employment Working Group and she also volunteers with the AODA Alliance.

Jody Chan (they/them):

Advisory Board Member


Image caption: Selfie of Jody in a library, with sun coming in through a window beside them. Bookshelves and desks can be seen in the background. Jody is wearing bright lipstick, eyeliner, and a cap with the words "sad gay" on it.


Jody (they/them) is a writer, organizer, and therapist-in-training living in Toronto. They believe deeply in the importance of storytelling, care, and joy in movement-building. They work at The Leap, organize in QT/BIPOC mutual aid and healing justice spaces, and drum with the Raging Asian Womxn Taiko Drummers.

Jheanelle Anderson (she/her):

Advisory Board Member


Image caption: Jheanelle is smiling slightly into the camera, the photo is black and white, and she is wearing all black.


Jheanelle Anderson holds a Master of Social Work from the University of Toronto specializing in Human Services Management and Leadership combined with a collaborative specialization in Community Development. She is currently a research assistant at The Centre for Research & Innovation for Black Survivors of Homicide Victims (The CRIB) working under Dr. Tanya Sharpe on projects for the advancement of research and policy relevant to the surviving family and friends of Black homicide victims and to develop culturally responsive supports and services to better serve this population.

As an immigrant with disabilities who was initially rejected and deemed a “burden” on the Canadian health system, Jheanelle nurtures a keen interest in the intersections of immigration and disability and the trauma experienced during the immigration process. She plans on pursuing a doctorate degree to expand research, literature, and policy on an underserved and underrepresented group in social work – immigrants with disabilities.

Image caption: Kate is smiling into the camera. She is wearing bright red glasses and is posed in front of a background picture of a galaxy.

Kate Welsh (they/she):

Advisory Board Member


Image caption: Kate is smiling into the camera. She is wearing bright red glasses and is posed in front of a background picture of a galaxy.


Kate Welsh is a white settler, cis queer crip activist, feminist artist and educator. She is the founder of Equity Buttons and the Community Resistance Intimacy Project – CRIP. Kate frequently speaks on panels at conferences and runs workshops titled Unpacking Ableism, which focuses on being an ally to disabled folks and DIT (do-it-together) access. Kate explores ways to make disabled lives better now by creating giftable art that tackles topics such as chronic illness.

Chavon Niles (she/her):

Advisory Board Member


Image caption: Chavon is smiling into the camera. She is wearing a blue, white, and green stripped button up shirt and has shoulder length black hair.


Chavon Niles is Guyanese Canadian PhD Candidate (all but dissertation) at the Ontario Institute for Studies in Education, University of Toronto. Chavon’s doctoral thesis explores the invisibilization of racialized immigrant youth with in/visible disabilities in the Greater Toronto Area. Using narratives, Chavon hopes to better understand how youth access/navigate education, health and human services using critical race, critical disability and postcolonial theories. Chavon is also a seasoned educator. As the Senior Coordinator at OCASI- Ontario Council of Agencies Serving she leads a federal and provincial award winning community education campaign that brings greater attention to the challenges and barriers immigrants and refugees with in/visible disabilities experience in Canada. She works with organizations across Ontario to ensure their policies, practices and procedures are equitable to diverse service users.

© 2023 by Disability Justice Network of Ontario.

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